Determined to be joyful to be heard to be cheeky to be accepted to love to be understood to learn to thrive
SATB2 Connect is the dedicated volunteer-governed charity that supports families and their loved ones diagnosed with SATB2 Associated Syndrome in Australia, New Zealand, and neighbouring countries in the Asia Pacific region.
SATB2 Connect is motivated to find ways to research and educate on the best outcomes for those diagnosed with SATB2 Associated Syndrome.
Our approach is to identify the unmet needs and gaps our community faces, to propel positive outcomes for all individuals diagnosed with SATB2 Associated Syndrome worldwide through collaboration with universities and global SATB2 Organisations; because no family should be left behind.
SATB2 Connect is a community of families coming together to advocate for their loved ones, and support each other through their journey.
Sharing this with medical health professionals together with researchers to further their understanding to create a better future for all individuals living with SATB2 Associated Syndrome and their families.
Our vision is to build a community of partners who navigates the path of diagnosis, treatment, and management together, so that individuals and their families achieve the highest quality of care and the highest quality of life.
Resources and information to help those new to SATB2 Associated Syndrome.
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About the Foundation
SATB2 Connect will work together with national and international organisations, Australian universities, and medical research institutes to collaborate on awareness, advocacy, and research projects to become a well-supported and informed community to further empower families to ensure they have optimised support necessary for quality of life.