Why we need research
Australian Research Collaborations
Shortly after SATB2 Connect officially launched, the exciting news of our new partnership with The University of Sydney, truly gave our community the strength to carry on, and with those relationships we have started the beginnings of research in Australia for SATB2 Associated Syndrome.
The next 18 months, SATB2 Connect will have established a good understanding of the needs and gaps of our SATB2 community, bringing forward a Delphi study and the start of clinical guidelines, together with an ongoing flow of resources empowering families and educating those treating individuals diagnosed with SATB2 Associated Syndrome.
In the same spirit of partnership, we have started working with the University of NSW and University of Technology Sydney. We have begun a project to create the SATB2 genetics tool kit explaining genetics, and the pathways of support for the family unit.
This project will potentially collaborate with international SATB2 organisations and researchers to ensure that families’ needs are met globally.
With the recruitment of wonderful volunteers who are currently within their master’s degree in genetic counselling at UTS, we will be able to translate medical and scientific journal articles for the everyday parent who depends on this research to support their child.
Whilst these projects are set to begin, we are always on the lookout to raise awareness and advocate for our community within all areas of research Nationally.